Life after Sydenham’s chorea


”I think there’s something very difficult about a condition that can fluctuate. Services for adults tend to assume that you are who you are and that’s how it is. And […]

An international collaboration to agree best practice for SC

The second of our presentations from the 2024 Online event –  https://youtu.be/bgGZWn7hlpU?si=09xJZm5WdwlUaC-N Transcript: [Michael] OK. Well, thank you for the invitation to speak. It’s always a real pleasure to actually […]

Nikki & Gracie

“I became this mother that I never wanted to become, and I lost it with all of the doctors and nurses, and I said, “If you don’t help me and […]

Antibiotic prophylaxis: challenges for Italian patients

https://youtu.be/oRRtES5JRcQ [Emanuela]In Italy, penicillin injections represent the majority of prescription choices for rheumatic fever and oral penicillin is prescribed to a very less extent, and I think the main reason […]

An international collaboration to agree best practice in SC – the Delphi Project

https://youtu.be/FbAcyHsuTgU Dr Michael Eyre, Clinical Research Fellow at King’s College London and Honorary Consultant Paediatric Neurologist at Evelina London Children’s Hospital, UK “I trained in Natural Sciences at the University […]

Questions to Callum and Andrew

https://youtu.be/uQ5eJAjgl4I See their presentation “From Sydenham’s to Kilimanjaro” here. Transcript “Do you mind just telling us what the your relapses were like, I mean you, you were obviously very badly […]

Italian approaches to Sydenham’s chorea

Dr Giacomo Garone (Paediatric Neurologist, Rome, Italy) discusses data from Italy and current practices. Transcript [Nadine] And the charity is really excited to welcome our first Italian speaker and the lovely […]

The UK and Republic of Ireland experience of Sydenham’s chorea

Dr Tamsin Newlove-Delgado (Senior Clinical Lecturer and Hon Consultant in Public Health) & Dr Oana Mitrofan (Consultant Child and Adolescent Psychiatrist), both of Exeter, UK, present their surveillance study of […]

From Sydenham’s to Kilimanjaro

https://youtu.be/tConGMHg4II One family’s experience of Sydenham’s chorea – and where it has taken them since. Transcript [Andrew] Good morning, everyone. We felt it would be quite nice for other parents […]

Sydenhams chorea Online education and awareness event 2023

“Striving for success – modern research in Sydenham’s Chorea, and how it can improve care in the future” Friday 3rd March, 1000-1400 UTC.   Other sessions will be uploaded soon! […]